CleftPALS Vic, SA and Tas on Facebook – please come and join our vibrant and supportive community hub. Chat, share stories, hear latest news and events and meet others. We also have a Private page, in case you are not ready for people outside the cleft community to view your comments. When you ask to join Facebook we may message you for more information – we do this to keep our community secure.
www.bullying.com.au Website and book “Bully Blocking” offer practical advice to help children (aged 4-16) to deal with bullies
Breastfeeding advice: some cleft lip only babies are able to feed directly from the breast, and some mothers have had success expressing. Contact our Feeding Hotline and CleftPALS Vic Facebook to chat to other parents about feeding. The Australian Breastfeeding Association offer breastpump hire.
Changing Faces is a UK organisation offering information and support to children and adults who have facial disfigurement. Some excellent guides for helping your child
CLAPA is the UK Cleft Lip and Palate Association. This site has lots of good information including lots of publications and discussion forums
CleftPALS Vic is part of the CleftPALS Australia group, including our sister organisations CleftPALS NSW, CleftPALS Qld, CleftPALS WA. Looking for information for South Australia and Tasmania? that’s us! CleftPALS Vic supports families in SA and Tas following the devolution of CleftPALS SA and CleftPALS Tas.
Cleft Palate Foundation is a US organisation offering information to parents of babies born with clefts and other craniofacial anomalies and to health care professionals who are involved in the care of affected infants
Cleft Clinic, Royal Children’s Hospital has lots of resources, information and links
The Cleft Club is an interactive US club for people affected by cleft lip/palate. There are different forums where messages can be read and posted
Genetic Support Network Victoria aims to facilitate an information, support and advocacy network that empowers people to identify and / or overcome genetic challenges
The Jigsaw Foundation believes facially deformed children deserve an equal chance in life. Supporting the Craniofacial Unit at the Royal Children’s Hospital, Melbourne
NAM (nasoalveolar moulding device) information is a bit hard to find. Try Children’s Healthcare Atlanta and the Leo H. Rheam Foundation. Different hospitals may do NAM treatment differently; speak with your surgeon about how it will work for you
Operation Cleft is an Australian based charity helping cleft affected families in Bangladesh
Operation Smile is a volunteer organisation repairing clefts and advocating sustainable healthcare systems for children around the world
PRAISE provides information, support and education for families affected by Pierre Robin Sequence. Also try RCH on Pierre Robin
Speech Pathology Australia is the professional body for speech pathologists. Includes information for the public about speech pathology and referrals
Speech Pathology at the RCH is an informative site with lots of information and links
Wide Smiles is a USA organisation with resources about cleft lip and palate